Building faith muscles for fibro.

So dear friends, tomorrow is May 12th.  It is National Fibromyalgia and Chronic Pain day.  My personal efforts to make this dis-ease known have grown to over 25,500 fans on my FB fan page for my blog.  Although I must confess…most follow because of my quotes, and that’s okay too.  So tonight, I’d like to talk to you a little bit about faith.

When you start out feeling human and “whole”, you might not realize what a great thing it is to be seen as you.  You are simply Joe, or Josefina, or Steve.  At some point though, if you develop health problems, you seems to identify yourself with them.  You are no longer Aimee.  You are Aimee, the writer, living with invisible diseases and pain.  This can be both a blessing and a curse…because like the great C.S. Lewis said “Friendship is born at that moment when one man says to another: “What! You too?  I thought I was the only one.”

So you find out you are not alone with that thing you have that no one can pronounce.  However, you start to cling to it.  All of its symptoms, its pain, and it’s mess become you.  Until one day, you can take it no more, and you claw your way up out of the misery and stop checking the “support” group that really provides no support.  No, it doesn’t.  It provides a place to vent.  But if we were to be honest with ourselves, and we need to be, it doesn’t build your faith muscles.  It lets you say things like “I’m sick…I am so exhausted today.”  And people tell you to rest because they mean well.  They really do.  But the truth is, we are all exhausted in these groups.  We are all in pain.  Some of us are working towards finding a better way to live.

So I would like you to get a journal.  It can be any journal you want.  This one happens to be on sale that I linked.  And I like the quote.  I have heard it’s pretty popular.  Anyway, start out with the date. That’s easy enough.  Then I’d like you to write ONE, only one good thing that happened that day.  It can be that you got out of bed.  Then close the journal.  Then the next day do the same thing.  Work up to actually journaling about the good in your life.  No matter what happens that day, find at least one good thing on which to build your faith muscles.  You can do this.

So in honor of National Fibromyalgia Day, get your journal ready.  Your journal of faith.  Your journal of hope.  Check back here because I am going to have more ideas for you soon.  Don’t forget, I’m here for you.  I know you can do this!

Fibro Day Faith

Motivational Monday…food triggers

So, a year ago, I made a decision that changed my life.  I decided to step down from teaching and focus on my health.  I don’t even think I made the decision, it was more like it was made for me.  I can honestly say I am still learning and moving forward.  I researched all-natural supplements and learned as much as I could.  I talked to friends about doctor choices, but was not satisfied with what doctors had to say.  I just knew in my gut they were wrong.  I can’t explain it, but I knew that they were treating me symptom by symptom and not looking at everything that had happened to me in the last 3 years.

I looked at my diet, and started removing foods.  I looked at my life and started removing other triggers.  Stress.  School.  Being around sick kids.  Being around negative people.  Being around people in general.  I peeled back as many layers as I could to find out what was causing the problems.  I thought I had it figured out, and I did.  But it had to get worse, much worse, before it could get better.  By the time January rolled around I think I had been wrapped in a cocoon of blankets for 3 months.  I was in deep pain, and it hurt to my very bones.  My stomach that had previously been a volcanic mess, was finally starting to settle because I ate very little for a while until I figured out what I could tolerate.

It turned out I had Epstein-Barr virus in my system that had most likely triggered Fibromyalgia.  The sad thing is, you can have every trigger point there is and it still takes 3 years for someone to say this is what you have.  I met a wonderful lady through my new business opportunity, and she began helping me.  Most likely the first step to helping me was believing in me.  I can honestly say when she walked over to me the first time, I thought she was one of “them”.  Someone who thought they could help me, but sadly, didn’t listen to me.  I am extremely thankful this was not the case.

So I sit here tonight, full from my Mother’s Day meal, a tiny bit pinker than I should be because of soccer today and the beach yesterday, and I realize that if you are reading this, on National Fibromyalgia Day, please be aware that the pain is very real.  I have spent the last 3 years cringing whenever someone touched me, went to pat my arm, or worse yet, pat my back.  I have avoided people like the plague because I was too tired to explain yet one more thing to them.  ONE MORE THING.  But tonight, I have hope.  So if you are sitting there in pain, know that I believe you.  And that’s enough to start with.  Knowing you are not alone.  So I dared to go out on a limb and offer advice not only through this blog but to all who ask me on my new business page.  I am not a doctor…I am one person with a story.  Your journey might look different than mine, as it should.  Be don’t stop if you aren’t there yet.  You’ll get there. 

I close with a quote from my other page…the tab explains it up top on this blog.

IntegrityCheck out the work with me tab for more on what I later created to help others through this process.


Challenge accepted…

Fibromyalgia Awareness

Every once in a while you might feel like Life has marched right up to you and thrown down the gauntlet.  Poof.  The dust rises and you look her right in the eye, and you say come on bitch.  I got this.  I was having a year like this, but no more.  I made myself do a 90 day challenge on my little known supplement page called Vitalize You.  Of course, my friends all know about it, but I won’t apologize for waking up and realizing what is in the food we eat.  What is in the medicines we take, and what WAS in my vitamins.  I now am on completely all-natural NON GMO products.  It is very important for someone with autoimmune conditions.

May 12th is Fibromyalgia Awareness DAY.  One day?  Are you serious?  No, that won’t cut it.  I am going to try to talk about it more on my FB page for my blog.  So to start off with, I encourage you to read a few articles I found.  The first one was really hard for me to wrap my head around.  I hurt all the time and you are telling me to exercise.  WHY??  Even if I didn’t hurt, I am not likely to actually WANT to exercise.  Sigh.  Read Fibromyalgia Exercise Studies if you want.  I have some lovely friends who try to encourage me out of my hermit-like state.  I appreciate you all.  Because I guess comfy clothes can be worn walking.  So technically I don’t have to change…I can add that to my list.

Next, I was reading about Vitamin D Benefits and Fibromyalgia.  I am really low on Vitamin D since I have that pesky vampire-type thing going on where my skin can actually be harmed by the sun.  Go figure.  I am now on an all-natural readily available Vitamin D supplement.  Lastly, I read about this list where I pretty much had all the symptoms on it.  It was depressing for a second, and then I thought, I have had these symptoms for as long as I can remember, get over it.  Move.  Do something.  A war in my head would be like Darth Vader fighting Luke.  Obviously my symptoms are the dark side…I am not giving in!  Oh, the list is called Fibromyalgia Symptoms.

I hear the whooshing noise of the light sabers…I am screaming.  Noooooo!  What?  I am a geek.  You have whatever you want in your head.  Okay, back to the fight.  Whoosh.  That breathing mask noise is on my nerves Darth.

I leave you with this quote I have used before, and still love:

Dark Side QuoteP.S.  I do not look like Amy Farrah Fowler.