At least I have my ears…

Last night I could not sleep.  I did the same things I always do to get ready for bed, but sleep was elusive.  I ran everything over in my mind from earlier.  I took my vitamin D, glucosamine, rubbed the stuff on my sore shoulder, and heated up my heating pad.  My...

It’s just blood…

I’m not even sure how to start this post tonight.  I went to the doctor’s office today for one of my check-ups.  When most people say that, it involves some routine physical.  When I say that,  it involves a whole entourage of people.  I bet you...

HereditaryHemochromatosis

As we left off, our heroine was fighting things she couldn’t see with sub-par weaponry.  In other words, it would have been nice if my doctor had thought to look further into my serious life threatening disease.  However, she was very busy patting my hand and...

Summer of 1998

Porphyria and Survival As I ended my last blog, I mentioned I had approximately 3 months to get “better”.  Let me explain.  There is no cure, so my idea of getting better was to get my condition under control.  Maybe you have never felt your life spiral...

1998 lingers on…

The Vampire Disease So, I can’t recall all of the diseases I was tested for at this point in my life, but enough blood was taken from me to perform several tests with really long names.  At best, I remember thinking that none of them sounded good.  Porphyria...
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